I was honored to travel to Eastern Carolina University to speak at the 15th Annual Arthur Kopelman Lecture. It’s so impressive that they wanted a NICU parent to address their neonatologists and NICU nurses. They value the NICU parent perspective.
I had the honor of presenting at the 38th Annual NANN Conference in Las Vegas, Nevada that took place in September of 2022. As a NICU Parent Professional and founder of Speaking for Moms & Babies, this was something I will cherish always.
September is NICU Awareness Month and September 30th is NICU Awareness Day. This month also hosts a few other important recognition weeks. Neonatal Nurses Week was the week of September 11th and Neonatal Therapists Week was the week of September 18th.
Last month I participated in the International Children’s Advocacy Network (iCAN) Summit in Lyon, France. iCAN is a worldwide consortium of children’s advisory groups that work in unison around the world to provide a voice for children and families in medicine, research, and innovation.
My micro preemie turns 10 today! She was born at 23 weeks gestation, weighing only 1 pound and 4 ounces and she was just 11 ¼ inches long. It was a long journey, filled with trauma, fear and a lot of love. Happy Birthday to my micro preemie!
It was an honor to present at the 2022 Pediatric Academic Societies (PAS) Meeting in Denver last weekend. This event was very special to me because I was presenting the research on the paper that I published in the Journal of Perinatology as lead author, as part of the International Neonatal Consortium, called “The culture of research communication in neonatal intensive care units: key stakeholder perspectives.”
The NICU Parent Network (NPN) and National Perinatal Association (NPA), stand in solidarity with our European neonatal and perinatal colleagues as they struggle to provide care and support to the most vulnerable, medically fragile babies and their families. The Relief Fund for NICUs in Ukraine, a fundraising effort providing targeted support for the Polish NICU parent organization, the Coalition for Preemies – Koalicja dla wcześniaka are providing support and we want to help.
This year I was able to collect over 100 toys for children hospitalized over the holidays at Maria Fareri Children’s Hospital in New York.
Wednesday November 17th was World Prematurity Day, and boy did we celebrate! The New York Bridge State Authority was super supportive and agreed to light up the Mid-Hudson Bridge (in New York) purple to help us spread awareness. It was beautiful.
In honor of World Prematurity Day, the Franklin Delano Roosevelt Mid-Hudson Bridge in Highland, New York, USA will light up in PURPLE at dusk on November 17, 2021 to raise awareness for premature babies like my daughter, Joy. Will you watch it live with us? You can watch it live on my Facebook page: https://www.facebook.com/JenniferDegl
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