This year I was able to collect over 100 toys for children hospitalized over the holidays at Maria Fareri Children’s Hospital in New York.
Wednesday November 17th was World Prematurity Day, and boy did we celebrate! The New York Bridge State Authority was super supportive and agreed to light up the Mid-Hudson Bridge (in New York) purple to help us spread awareness. It was beautiful.
In honor of World Prematurity Day, the Franklin Delano Roosevelt Mid-Hudson Bridge in Highland, New York, USA will light up in PURPLE at dusk on November 17, 2021 to raise awareness for premature babies like my daughter, Joy. Will you watch it live with us? You can watch it live on my Facebook page: https://www.facebook.com/JenniferDegl
Our paper in the Journal of Perinatology looks at the relationship and communication between neonatologists, NICU nurses and parents in the neonatal intensive care units and how that affects clinical research. The NICU key stakeholder survey results discussed in the paper suggest that there are considerable opportunities for improving communication with parents and nurses about clinical trials on neonatal units.
Three parents share personal experiences, often raw and painful, to urge the neonatal nursing community to increase actions, whether in research, quality improvement initiatives, or policy, to propel the work forward by enhanced collaboration with mutual trust and understanding so all NICU babies thrive from new drug development.
As an about-to-be first-time father, Ted Yang felt he had it all: married to the love of his life, a fulfilling and lucrative career, and an instant family with triplets on the way. Things turned around quickly and he and his family were thrust into the NICU world and their lives would never be the same. Read “Table for Five” to learn more about Ted Yang’s journey.
It all changed in the blink of an eye with premature birth, a death, and years-long struggle to keep a child alive. Born at 24 weeks, the tiny Yang Triplets had the odds stacked against them.
How far does a father go to hear his daughter laugh? As far as it takes.
A story of hope, Ted Yang shares his fight, his fears, and how the experience of fatherhood redefined him, personally and professionally. This is a story of a family, Ted and Christine Yang’s family, thriving in spite of obstacles and setbacks.
Last month I had the honor of being the closing Keynote Speaker for the 2021 NEANN Annual Conference. NEANN stands for the New England Association of Neonatal Nurses- who are the New England Chapter of NANN (National Association of Neonatal Nurses).
I Was Small, But Now I’m Tall won a 2020 Dragonfly Book Award in the category of Picture Books (Ages 3-8) Nonfiction. The Dragonfly Book Award from The Story Monsters Approved! book designation program was developed to recognize and honor accomplished authors in the field of children’s literature that inspire, inform, teach, or entertain. A Story Monsters seal of approval on a book tells teachers, librarians, and parents they are giving children the very best.
I had the privilege to speak at the Prolacta Bioscience Virtual Town Hall and share my story as a NICU parent of a premature baby who survived and thrived due to my ability to give her my milk.
“I Was Small, But Now I’m Tall” has been featured in the Perinatal Gazette. Please consider sharing “I Was Small, But Now I’m Tall” with any family who delivered a premature or medially fragile baby that spent time the NICU. I promise they will love it and it will inspire them.
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