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JENNIFER DEGL

SCHOOL LEADER, AUTHOR, SPEAKER, MATERNAL & NEONATAL HEALTH ADVOCATE
SPEAKING FOR MOMS & BABIES, INC.

Blog

The 2024 International Neonatal Consortium Conference, by C-Path, was a Success!

The 2024 International Neonatal Consortium Conference, by C-Path, was a Success!

Last week, the Critical Path Institute (C-Path) hosted the inaugural Global Impact Conference, at the Washington Marriott at Metro Center in Washington, D.C. This landmark event brought together more than 300 industry leaders, regulatory agencies, academic experts, and patient advocacy groups, all dedicated to advancing drug development and regulatory science for rare diseases. The International Neonatal Consortium, a subgroup of C-Path, also hosted their one day conference, of which I opened their Bronchopulmonary Dysplasia session.

Mom Congress and Hill Day 2024

Mom Congress and Hill Day 2024

A few months ago I participated in an event on Capitol Hill in Washington DC that was entirely made up of moms who advocate for legislation that supports babies and families. This event is called “Hill Day” and is sponsored by Mom Congress.  Mom Congress is the policy organization for moms in the U.S. – a mother’s membership organization that is addressing the most pressing policy issues of motherhood.

NICU Volunteer Coordinators Are Indispensable

NICU Volunteer Coordinators Are Indispensable

In contemporary healthcare settings, the role of a Neonatal Intensive Care Unit (NICU) Volunteer Coordinator is indispensable, as it embodies the essence of compassionate care and community support for families navigating the challenges of premature births and neonatal health complications.

New York Educational Policy Leadership Program 2024

New York Educational Policy Leadership Program 2024

The New York Education Policy Leadership Program (NYEPLP) is a unique, yearlong professional development experience that focuses on policy, leadership, and networking. The program explores timely education policy and leadership issues at the macro, strategic level through immersive experiences and virtual, interactive sessions. NYEPLP Fellows gain a broad view of policy issues and implications, and better understand the dynamics of strategic leadership.

The 2024 Gravens Conference On The Environment Of Care For High Risk Newborns

The 2024 Gravens Conference On The Environment Of Care For High Risk Newborns

I’m very glad that I was able to attend and present at the 2024 Gravens Conference On The Environmental Care For High Risk Newborns, in Clearwater Beach, Florida. My presentation was called “How to foster meaningful connections with families, and why it matters: Lessons from my life-threatening pregnancy and premature birth journey”- and it was offered both in-person and on Zoom for those who chose the remote option for the conference. 

It’s more than just a bond: nurses and parents are great hospital business

It’s more than just a bond: nurses and parents are great hospital business

A newborn’s admission to the Neonatal Intensive Care Unit (NICU) can be both stress inducing and frightening for a parent or caregiver. With nursing being a constant calming presence, a trusting bond between the parents and nurses often becomes the lifeline to survive the NICU journey. This bond impacts not only the baby and family, but also promotes the institution’s reputation within the community.

Duke Margolis & FDA Webinar: Advancing Drug Development for the Prevention of Spontaneous Preterm Birth

Duke Margolis & FDA Webinar: Advancing Drug Development for the Prevention of Spontaneous Preterm Birth

In the United States, spontaneous preterm birth (sPTB) is the leading cause of infant mortality, with 1 in 10 babies being born preterm. Despite the significant impact and medical need, there are currently no US Food and Drug Administration (FDA) approved treatments for the prevention of sPTB. Duke-Margolis, under a cooperative agreement with the FDA, hosted a public virtual workshop on Advancing Drug Development for the Prevention of Spontaneous Preterm Birth, and I was honored to be a part of it.

Preemie Chats: Canadian Premature Babies Foundation

Preemie Chats: Canadian Premature Babies Foundation

On this episode of Preemie Chats, Jennifer Degl will share what it’s like, as a NICU parent, to suffer through pregnancy and birth related trauma before a baby’s birth, and how that impacts relationships, emotions, decision making in the NICU and beyond. She also will recognize and validate many of the emotions felt by NICU parents, as they watch from the sidelines while others care for their baby, and list strategies to help parents process what has happened and begin to move past their NICU experience and maybe even give back to their hospital or peer groups.

NICU Parent Network Leadership Summit 2023

NICU Parent Network Leadership Summit 2023

A few weeks ago I had the pleasure of attending the 2024 NICU Parent Network Leadership Summit. This summit is particularly meaningful to me, as I am a member of their Board of Directors. But honestly, the most special part about going to this summit each year is the feeling that I am coming home. The NICU Parent Network is the premier US-based professional organization of NICU parent leaders who collectively represent the needs and best interests of NICU families.

NICU Alumni Podcast

NICU Alumni Podcast

I was honored to be a guest on the NICU Alumni Podcast series, and it was just in time so that I could share it during Prematurity Awareness Month!