by Jennifer Degl | Jul 24, 2026 | Blog, Health Equity, iCAN, Pediatrics
From July 12–17, children, young adults, parents, caregivers, healthcare professionals, researchers, and industry partners from around the world gathered at Barretstown in County Kildare, Ireland, for the 12th Annual International Children’s Advisory Network Summit....
by Jennifer Degl | Jul 14, 2026 | Blog, Hill Day, NICU
Raising Our Voices on Capitol Hill: The Second Annual NICU Parent Network Hill Day On June 10–11, 2026, NICU Parent Leaders, bereaved parents, advocates, and organizational representatives from across the country gathered in Washington, D.C., for the NICU Parent...
by Jennifer Degl | May 14, 2026 | Blog, Preemie, Preterm Birth
Fourteen years ago, our family’s story changed forever. My daughter, Joy, entered the world at just 23 weeks gestation, weighing only 1 pound, 4 ounces, and measuring 11.5 inches long. She was impossibly tiny, with transparent skin and a body that had to fight for...
by Jennifer Degl | Feb 8, 2026 | Blog, FDA, NICU, NICU Parent Network
The Food and Drug Administration (FDA), in collaboration with the University of Maryland Center of Excellence in Regulatory Science and Innovation (MCERSI), hosted the Advancing the Development of Pediatric Therapeutics (ADEPT) 10: Addressing Challenges in Neonatal...
by Jennifer Degl | Sep 28, 2025 | Blog, Hill Day, NICU Parent Network
This past July, the NICU Parent Network (NPN) proudly hosted our very first Hill Day in Washington, D.C.—and what an unforgettable experience it was! Organizing such an event was no small undertaking, but it was worth every moment. Before sharing the highlights of our...
